Showing posts with label walk. Show all posts
Showing posts with label walk. Show all posts

Wednesday, January 23, 2013

Walking With You ~ Steps Back Into Life


Week 3 ~ Steps Back Into Life
Share about your first steps back into life. What helped you survive in the world outside as you took those first tender steps? Are there still tender areas for you today, living in a world that doesn’t embrace or understand the loss of a baby/child? How do you cope with those struggles? What advice would you offer those new to this walk to encourage and bring hope? How has this changed for you from the beginning? If you are in early grief, what do you fear/struggle with as you try to navigate a new normal….life without your baby?

I think we were all thrust back into the world, into life, whether we wanted to or not. The world goes on around us despite our losses. I know many times I wished that the world could just stop like it felt like it stopped for me. But no, time kept moving and the world went on its merry way with barely a blink of an eye. It seemed like the life of my precious girl was but a blip in the radar, Some may deem that little blip insignificant but to me it meant everything.

37 weeks.

The day after we came home we went back to the funeral home so that I could dress Carleigh in her burial outfit. Later that week we had her visitation and her service. We had quite a bit of support that week after her birth as we had family down in the area and everything was being planned for the service. My mom stayed with us to help out with Kyndra. I wish I could say that the support continued but frankly, it didn’t. Don’t get me wrong, we received many cards and messages and even phone calls with people giving their sympathies and those were very much appreciated, but  they only last for so long. Eventually they stopped. We don’t have any family and few friends where we live so in person support was very limited for us. There were a few that continued to give us support.

The most support I received was from the online blogging community so that is where I spent a lot of my time (plus writing was/is a big outlet for me). I was and still am criticized for that. I have been told that all I do is spend time on the computer and supposedly this is the reason many people don’t come visit us from where we are from. It leaves a very bitter taste in my mouth that people have judged the things I have done while grieving. I wonder if I would have been criticized had I attended a in real life support group? There was no support group for me to go to. The people that have criticized me never called me every day to see how I was doing yet people who I had never met at all were checking up on me and supporting me in ways that so called family and friends failed to do. I understand and give grace to those who weren’t there because they didn’t know what to do or say. I get that. It’s hard to know how to support others when you’re afraid you may say or do the wrong thing. That isn’t the issue I have with people. It is judging how I am grieving and coping and even comparing how I am grieving with how others have grieved. I will openly admit that I spent a lot of time on the computer that first year and even into the second year, but that is what I needed. I needed support and love and my online friends were the only ones still willing to give that to me when I needed it.

For many months after Carleigh’s birth I did not want to leave our house. I was confronted about it by people who didn’t understand. All it did was leave me in tears because I didn’t understand either. I didn’t know how to explain that I just didn’t feel like going anywhere. Going out would mean I would likely see someone who was pregnant or who had a small baby and it was difficult for me to see either one for a while. Going out would mean I would become annoyed and angry for no apparent reason. Going out would mean I would have to possibly face crowds of people that seemed way too happy than they ought to be. Going out only magnified what I was missing. After about 7 months I started to work on getting better with all of this. I didn’t like being like this but I couldn’t help it. Eventually I worked through it but it was something I had to do alone (aside from my online friends who were right there with me).

One thing that helped me (aside from my living daughter) was helping others. With every person I helped it made me feel a little closer to Carleigh. Most of it was helping others in their grief as they walked the road with me, but something I did was pump my breast milk for about 3 weeks and then I gave it to my cousin. It sounds honorable but I didn’t intend to donate when I started pumping. It was merely to avoid engorgement. By the time I had decreased my supply enough to not have to pump I had over 300 oz in my freezer. Naturally, someone had to taint that experience too and I’ve heard conflicting reports that the milk was used and that it was dumped down the drain. I would hope it was used but in the end it doesn’t really matter because I freely gave. What people choose to do with a gift is up to them.

I think one of the hardest things in going into the outside world are the questions that people ask. It’s bound to happen so you can’t avoid it. People will ask if you have any children or how many you have. It is a difficult question to answer for a parent who has lost a child. You are torn with what to tell them. Do you tell them the truth and include your Heavenly child and possibly make them uncomfortable or do you omit your Heavenly child to avoid the awkwardness and in return feel guilty for doing so? It isn’t an easy choice. I don’t think either way is wrong. I think a parent can share as little or as much as they want. I used to include Carleigh every time but there have been times more recent where I haven’t. While I know that’s ok, I still felt a pang of guilt that I should have included her. I think it is easiest to tell strangers because you can act like they are still living. When asked how many children I often just say 5 girls and leave it at that. When asked the ages of my children I just give the age Carleigh would be if she were still living.

Things are much better now than those early months. I can be in public again and be around pregnant women and newborns without feeling that pang. My emotions aren’t all over the place and I if they do go up and down I can get a better handle on them. I do still enjoy helping others though! That is one thing that hasn’t changed.

We live in a society that shies away from death, especially the death of a baby. Many seem to think that since the baby’s life is so brief that it is easier to get over and move on from but that is certainly not the case. I think losing a baby/child is the most difficult loss of all. It is against the natural order of how we think death should be. Children bury parents, not parents bury children. I think each day we get closer to breaking the stigma of baby loss. There are many people and organizations who speak out and bring awareness. Just look how far we have come! As long as people continue to move forward progress will continue to be made.

For those of you that are newer on this walk, you will undoubtedly come across people who do not support you if you haven’t already. I am sorry to say but this will continue to happen. Don’t let it bring you down. While a few may intentionally hurt you, most just don’t know how to handle the loss of a baby. Don’t feel guilty for being happy. It’s ok to laugh and to smile and have fun. Our babies would want that for us. Being happy doesn’t mean they aren’t love or missed. Nothing could ever change that.

Wednesday, February 03, 2010

Me lately

Things have been going pretty good lately. Life has been as busy as always plus I've been tired lately, which could be a combination of me staying up later than I should and my pregnancy. I was able to get in a good nap yesterday but today I didn't as I kept getting phone calls from my hubby (thanks a lot!). I want to let everyone know that I will not be sharing pregnancy updates on this blog unless it applies to my journey with Carleigh. All updates will be on my family blog, so if you wanna check up on me you should check there. You know, unless this baby receives a fatal diagnosis too, but I'm not anticipating that.

I finally made it to the cemetery to visit Carleigh on Monday. It's been several weeks since my last visit. The weather was pretty decent that day so I thought I would take advantage. I only stayed for a few minutes but it was nice. Pretty soon I will have to think about what spring arrangement to put in her vase.

I've got several things I am planning right now. One is Carleigh's birthday celebration. I plan on having a party this year where anyone is welcome to come and celebrate with us. The first birthday is always a big one and this is the only year we plan on doing this. For every year after we will just celebrate as a family. I really hope to have a good turnout for her party because it means a lot to me. I will be disappointed if certain people do not come or if we don't have a good turnout. And that isn't meant to guilt anybody but a simple fact. I could go on but I'll stop there. And really, we don't need people there to honor the memory of our daughter because I can do that on my own every day. I just want this year to be everything I picture it to be. Is that too much to ask? (Thank you to those who have said that they would be there! I can't tell you how much that means to me!)

In addition to her birthday celebration I plan on holding some giveaways and I'm excited for this. I've already got a few set in stone (thank you to those who have been generous!!!!) and I'd like to do a few more. I've got some ideas for some more but I'm still deciding.

The other thing that I am planning is our family team for the March for Babies. This year we are going to do the walk in Findlay since the one in my area was combined with a larger one because of economic reasons. So, there really should be no excuse why we shouldn't have a nice sized team this year. People don't have the excuse of driving several hours down now since we will be local. (Thank you to everyone who was on our team last year for supporting us!) And really, I don't think that's a good excuse anyway since Anthony and I have been making the trip for 4 1/2 years. No doubt if the tables were turned we would be there for support. I just hope people want to do the same for us.

Sorry if I seem a little angry or whatever you want to call it (I actually wrote something meaner but went back and lightened it up). I kinda just went into a mood, which is most likely pregnancy hormone induced as I am hardly ever in a mood (I'm usually nice and cheery!) or it could've been caused by my husband because he certainly knows how to annoy me. Maybe it's both. I think this weekend would be a good one to sleep in. Hear that Grandma? (hint hint)

Saturday, September 26, 2009

March for Babies 2009

Today was the March for Babies walk in my area. I created my Caring for Carleigh team and we had 8 of us walking that day. I had a few people not come to the walk. I was worried about the weather as it called for rain but God was on our side! It was foggy and muggy and rained up until the walk but it didn't rain the entire time! Praise Him! I wanted to print out a picture of Carleigh and attach it to Kyndra's stroller but in the hustle and bustle of getting around I totally forgot. I'm sure she doesn't mind. :)

Those walking today on the team were me, Anthony, my best friend Lindsey, her husband Jarrod, my sister Katrina, my mom, Aunt Nancy, my cousin Amber, plus all of our kids! So 8 adults and 5 kids!

The walk itself went great. There was a 2 mile and a 4 mile course. We walked the 2 mile and then came back to the park. Aunt Nancy accidentally fell down a muddy incline and tipped Kyndra and her stroller over too but other than that there were no accidents. They were a little muddy after the incident but we got it cleaned up pretty good. The kids got some balloons from some clowns. We ate some food that was provided by Subway and Donatos pizza. There were some yummy cookies there too! I won a couple door prizes-a pizza from Papa John's and an oil change from Monroe.










I want to give a big THANK YOU to everyone who donated to me for the walk. I raised $400 for the March of Dimes and as a team we raised between $700-800. (I can't remember the exact amount.) Thank you to Brandy, Celia, Sarah, Dena, Camille, Jennifer, Rachel, Cathie, Jenifer & Brian, Sharon, Debby, Darcee, Heidi, Sara, and Carolyn. I couldn't have raised what I did without your support!!

Also a THANK YOU to Deidre from Dees T's who generously donated our team shirts for the walk. The design turned out really great and I loved it!!

Saturday, April 18, 2009

March for Babies

I wanted to let everyone know that I will be walking in September for the March for Babies sponsored by the March of Dimes. I have created a team named Caring for Carleigh and would love for you to walk with me if you are able. We will be walking in honor of Carleigh and all babies who have been born with anencephaly. More than 120,000 babies (1 in 33) in the US are born each year with birth defects. The March of Dimes is investing millions of dollars in Nobel Prize-winning research offering hope for preventions and solutions for babies born with birth defects. I would greatly appreciate if you would help to support these efforts by supporting us! For information you can visit either my team page or personal page or you can email me. You can register online and join my team.

My team page is http://www.marchforbabies.org/707236

My personal page is http://www.marchforbabies.org/hohaas

Email me at caring4carleigh@yahoo.com



Today there are 161 days left until the walk!

I know it may seem kinda early to start a team already but I would like to have plenty of time to raise a good amount of money. The more the better! I have set up a widget at the bottom of the blog to track the progress of my goal. Right now I have set it at $300 but I would love to raise more than that. I have set the team goal at $1000. You know what would be great!? Raising enough money to increase those goals to something higher! Join the team and spread the word!
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