As a mom to a child born with anencephaly it’s important to me that there is a site out there that gives honest and helpful information about anencephaly. One of those sites is anencephaly info. Too often there is misinformation out there about anencephaly and sadly many parents never come across the right information. I am so thankful that the creator of this site, Monika Jaquier, has put such a wealth of information together. Monika has been a big advocate for all of us with anencephalic children. If you need any type of information Monika is the person to go to. She’s worked with studies and doctors and has loads of experience in gathering data across the globe about anencephaly. Thank you Monika for all the work you have done!
Along with Carleigh’s story, there are stories of many others. There are resources and information for parents and also pictures of our babies. These pictures are quite important as they show our babies beautifully. Pictures on any search engine are very clinical and don’t represent our babies and how they truly are. In fact, these pictures can be downright frightening for parents with a recent anencephaly diagnosis.
If you are currently carrying a child with anencephaly or know someone who is please send them to this site!! The site can be read in 10 different languages.